Day 1
Saturday, August 14, 2010
Princess Ballet Camp
Day 1
Monday, August 9, 2010
Behavior Managment Plan
(yes, that says, "the trying really hard to follow directions award." She'll do almost anything for one of these crowns. If only I would have figured this out years ago!
look who else earned a crown!
Thursday, August 5, 2010
Clara's Half Birthday Update
Then when I'm finished, Leia cleans me first, and the bath tub cleans me second. Leia loves when I eat....
(I know, gross, huh? Can you believe my mom and dad let that go on???)
- I am a very silly girl these days. I LOVE Cade and Cora. They are very funny and they make me laugh and laugh and I love it! I even like a little rough play with them! I can handle it! I smile and laugh at everyone who talks to me! The only thing you have to do is say, "hi!" and I'm your friend! Oh, and Leia, I LOVE THAT DOG! I cannot get enough of her. Her ears are SO pointy and fun to pull and luckily she's a great sport about it. She's sweet to me.
- I am a wiggler. I love to jump in my doorway jumper. Boy can I make that thing go! And I love to lay on the floor. No more laying still for me. Once I'm down I'm rolling and scooting all over the place. Sometimes I even get stuck places like this...
Tuesday, August 3, 2010
Chemo Update
The other thing that is EXTREMELY frustrating to me and certainly Cora is the side effects of this chemotherapy. Cora looks and acts like a normal little girl and sometimes I even forget what her little body has been through. With many types of cancer you go through chemo for 6-8 weeks or until the cancer appears to be gone and that's it. Most the time long term chemo effects are minimal. But ALL in children is treated with a standard protocol of 2 years and 2 months of chemo in little girls with B cell ALL. The GREAT news is that she only has 5 more treatments over 5 more months and that her prognosis after that is VERY promising. And I thank God every day for that!!! The BAD news is that she's experiencing some neuropathy (swelling of the nerves) which seems to be getting worse as a result of the drug Vincristine that she gets through her port once a month. Vincristine is a derivative of the poisonous Vinca plant that many of us have in our window boxes. Essentially we are allowing our daughter to have small doses of poison leaked into her blood and hoping and praying that it is doing it's job and killing the cancer cells. The problem is that the vincristine kills and affects other parts of the body. In Cora's case the vincristine is affecting the nerves in her legs. She's experiencing lots of tingling and leg pain not only right after chemo, but all the time. Her legs hurt, she stumbles more than the average 4 year old, and she can't climb and run as well as her peers. The other day she told me, "mommy it feels like someone is putting hot glue all over my foot, but they aren't." When I was explaining the leg pain to Dr. G she said it was common, but needed to be closely monitored. She said some kids describe it as a dragon breathing fire onto their legs and it is very painful. Dr. G said that normally when treatment ends this gradually goes away, but it can be long term or last for several years. She is going to conference with the other 2 oncologists about actually reducing Cora's dosage of vincristine for the next five months to try to prevent long term nerve damage. Cora has also complained of eye pain every once in awhile which can also be due to nerves. Please pray that her vision stays good and we can keep the neuropathy to a minimum. When I think about this lil girl being affected long term from this chemo it breaks my heart! I JUST WANT IT ALL TO GO AWAY AND BE OVER! She's done so well to this point, but it's so evident that her body is DONE with the drugs! Many doctors even think that the standard protocol for this type of ALL is an overkill. Sorry this is a gripey post, but I just hate that this is the only form of treatment that's successful! I'm convinced there's a better way out there and we will continue to do our part to help find it!!!
Monday, August 2, 2010
Cora and Marshall Sittin in A Tree

Cade and his best bud (marshall's middle brother) now add fuel to the boyfriend/girlfriend flame any chance they get! At this point, Marshall, who is really into playing with the big boys thinks he's pretty much destined for life to be "Cora's boyfriend." I'm not really sure he knows he actually has a choice in the matter. Cora on the other hand LOVES Marshall and often tells strangers on the street that she is "Marshall's girlfriend!"

But they are seriously cute. Marshall really does take care of Cora. He hides her eyes on the scary parts of Disney movies, and last week at Bible school he picked the green gummy bears out of the bag and said as he handed them to her, "here, Cowa, I got you all the green ones because they taste the best!"
So Today Cade was very irritated with Cora because he was about to go to swim practice and couldn't find his goggles. He was very sweet and let Cora borrow his "good goggles" the other day when she asked. No one's seen them since. Cade in a very irritated voice said, "CORA!!! WHERE ARE MY GOGGLES???"
Cora in an equally irritated voice replied, "I DON'T REMEMBER WHERE I PUT THEM!!!"
Cade said, "Geez Cora! You don't remember anything! Probably when you're married you won't even remember your husband's name!!!!"
Cora yells back," YES! I WILL CADE! HIS NAME IS MARSHALL!!!"
If only all of life's big decisions were that easy!!!